2009- Annual Report 10
.................................................. 1.... 2... 3-5.................................................. 6... 7-8... 9-11 (MS) (SCA).... 12-13.... 14................................................ 15-16 (MND) MNDMND... 17.... 17.... 18-21................................................ 22-24................................................ 25-30................................................. 31................................................. 33
712 12-20101013 2009-10 1
- 12,000 (Spinocerebellar Ataxia, SCA) (Multiple Sclerosis, MS) (Muscular Dystrophy, MD) (Spinal Muscular Atrophy, SMA) (Motor Neuron Disease, MND) http://www.hknmda.org.hk 2 2009-10
1998 91999 CF/LIC/SO/19/21223 1073 28 20103308 130 ALS/MND 1. 2. 3. 4. 5. 20103308 2009-10 3
MND MS SCA 2 1 2009-2010 (SMA ) (MND ) (SMA ) (MD ) (MND ) (MS ) (MD ) (SCA ) (SCA ) (MND ) (SCA ) - - () 4 2009-10
20092010() (2009412011331) 2009-10 5
内 2010-11 21 12 20091016 6 2009-10
() () () () 2 2420 23 ( ) 2009-10 7
2010-2011 20103 12 12 612 0712 (1005030) 20091120() 16 8 2009-10
(MS) MS 4411 89 3 (SCA) SCA 4 5 塲 2009-10 9
0 9 920 26 1 0 12 BBQ 18 0941609840911 18 4 2 0 0 9 411() 25 2 0 0 9 512() 8 2 0 0 9 925()200910 31() 2 0 0 9 1031() 2 0 1 0 125()2010-11 09-10 塲 10 2009-10
2 0 0 9 69()6-2 0 0 9 825()5 2 0 1 0 111()4201027 ()2010-2011 2 0 0 9 719() 20 2 0 1 0 27() 13 09753603 360 27 0 9 10113 28 094310982510111 5 360 2009-10 11
2006-2007 2330269 2007 284 33 37 22 20091213 () 2009 25 20101 10() 18 () - 10 12 2009-10
2009717 8201252010129327 55 ()TRACY() 181118 2,000 833 12 4 2008-2009 MND 1243 80 20099114 80% 2009-10 13
2008 201031,200 6-7/3/09()16-17/3/09()3-4/4/09( )27-28/4/09()29-30/4/09()15-30/5/2009( ) 20096-932 32-22/12/0810 14 2009-10
6 41100 15 2 2009-10 15
(MND) MND 5331 MND MND MND 4(MND) 叁 2MND 16 2009-10
12 12 2009-2010 2010 13 2003 17 2009-10
18 2009-10
MS MND MND MS SCA 2009-10 19
20 2009-10
2009-10 21
09 18/4, 9/5, 8/6, 13/6, 11/7, 8/8, 12/9, 10/10, 14/11, 12/12 10 9/1, 20/2, 13/3 09 20/4, 18/5, 15/6, 20/7, 17/8, 21/9, 19/10, 16/11, 21/12 10 18/1, 15/2, 15/3 09 16/4, 23/4, 21/5, 18/6, 16/7, 20/8, 17/9, 15/10, 19/11, 17/12 09 8/6, 15/6, 18/6, 20/6 10 21/1, 18/2, 18/3 09 30/4, 29/5, 25/6, 30/7, 27/8, 24/9, 29/10, 26/11, 24/12 10 28/1, 25/2, 25/3, MS 09 25/4, 27/6, 28/11 09MS 15/8 09MS 26/9 09MS 19/12 10 13/3 10MS 7/3 MND 09 MND 20/6 09MND() 19/9 09MND 17/10 09MND 15/11 SCA 09 17/4, 19/6, 16/10 09SCAOK 17/7 09SCA+ 7/11 10 22/1 10SCAOK 12/3 09 2/4, 15/4, 6/5, 16/5, 26/5, 10/6, 19/6, 3/7, 14/7, 16/7, 28/7, 30/7, 8/8, 13/8, 21/8, 22/8, 3/9, 17/9, 6/10, 10/10, 16/12, 17/12, 31/12 09 16/4, 4/8, 18/11 09 20/9 10 BBQ 2/1 22 2009-10
10 18/1, 19/1, 23/2, 27/3, 28/3 09 1/4, 6/5, 3/6, 8/7, 5/8, 2/9, 3/10, 4/11, 2/12 10 6/1, 3/2, 3/3 09 12/5, 25/9 09 11/4 09 31/10 10 25/1 09 21/4 09 6/9 09 2/7, 23/10 09 6/6 09 5/12 09 14/11 09 22/11 09 23/12 09 18/10 09 3/6, 5/6, 12/6, 17/6, 19/6, 09 24/6, 3/7, 8/7, 10/7, 15/7, 17/7, 22/7, 24/7, 29/7, 5/8, 7/8, 12/8, 14/8, 21/8, 26/8, 28/8, 2/9, 4/9, 11/9, 16/9, 18/9, 23/9, 25/9, 26/9 09 9/6, 14/10 09 19/7 10 7/2 10 11/1 09 25/8 09360 5/7 09 11/10 10 11/1 09 09 10 20/6, 27/6 13/12 10/1 10 27/3 2009-10 23
09 20/4 26/4 22/10 11/11 18/11 26/11 10/12 () 15/12 10 18/1 20/1 5/2 20/2 6/3 12/3 15/3 蔴 () 17/3 10() 5/3 09 22/6 10 24/1 09 13/5 09 29/8 09BBQ 18/10 10 23/3 3/4, 4/4, 27/4, 28/4, 29/4, 30/4 10 1/3, 27/3 09 19/9, 26/9, 10/10, 17/10, 24/10, 31/10 09 3/11, 10/11, 17/11, 24/11 09 3/4 09 10/5 09 1/8, 8/8 09LOGO 22/8 24 2009-10
2009-2010 2009-2010HK$852,808.73 HK$1,310,592.38HK$457,783.65 HK$256,274.922010-11 HK$201,508.73 3 HK$200,000.00 : 1) MND 2) 3) 2010331 HK$1,475,424.89! 2009-10HK$852,808.73 3.3% 0.5% 0.6% 95.6% 2009-10 25
2009-10HK$1,310,592.38 18.4% 36.1% 17.8% 12.2% 4.6% 10.9% 2009-10 2009-10 HK$852,808.73 HK$1,310,592.38 26 2009-10
2009-10 27
28 2009-10
2009-10 29
30 2009-10
180139634 150-5-014835 91/5629 2338 4123 2338 2410 www.hknmda.org.hk hknmda@netvigator.com 2009-10 31
Please affix the stamp here Apply tape and seal here
Bayer Healthcare Ltd Benchmark Ltd. Chan Suk Man Dr. Yu Yuk Ling Hung Wei Chieh IN26 Josephine Chan Lam Siu Fong Lau Pik Ha Law Kai Man Li Tze Wai Mok Lau Mee Mr. Moss Hugh Murray Ms. Alice Liu Mun Yuen Shan, Ruby Ng Ka Lai Ng Pui Wah Philip Tang Poon Hon Fun Wong Chi Man Wong Yee Man Yam Joe Ming - 2009-10 33