國立中山大學中山學術論文典藏.PDF

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恶石
7 years ago
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7 People with disability have been an underprivileged group in our society for long. As the problems that face them are multi-dimensional, the health care provided to them seems burden-heavy. The development of civil rights has raised the advocacy for deinstitutionalized welfare for people with disability. However, it needs to note that the roles of family major caregivers can not be omitted when discussing deinstitutionalization or the health care to people with disability. The government should look squarely at this issue in its public policies and address the family-based or female health care work. People with intellectual disability seldom get married. As a result, the female relatives or mothers play a pivotal role in providing care work. The experiences of mothers therefore will enormously assist in investigating the process of care-giving. Mothers were the main participants for the purpose of this research. Nine mothers and one father within Kaohsiung metropolitan area who perform health care to their children with disability were recruited. This study used in-depth interview in attempt to apply labeling theory to portray the stigma and unfair treatment they encountered in the society. Its particular conclusions were as follows: 1. This study consistent with some previous quantitative studies supported the finding that the problems that mothers face include metal disordersemotional depressionseconomical difficulties and educational difficulties. 2. In tradition, care work is always viewed for granted as a responsibility to mothers. When health care work is needed, the responsibility undoubtedly will be distributed to them, but the decision making process does not always concern their willingness. 3. Because of the overlap between care work and paid work, mothers only seek those jobs that are un-technical, flexible and low waged. It is apparent that they still are trapped in so-called female poverty. 4. The discrimination and labeling against people with disability still exist in our society. The findings revealed that mothers take both positive and negative strategies to cope with this. The positive strategy is to strengthen their own self-confidence which is always from their participations in the society. Ignorance and avoidance however were reported as negative strategies. 5. Four mother types were constructed as a result of the enlightenment of labeling theory in the study and they are self-blamedritualismself-salvation and utilitarianism from which four different types of care processes and coping strategies are developed respectively. iii

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141 Abbot, D. A.,& Meredith, W.H.(1989). Strengths of Parents With Retarded Children. Family Relations, 35, Erickson,M.,& Upshur,C.C.(1989). Caretaking burden and social support :comparison of mothers of infants with and without disabilities. American Journal of Mental Retardation, 94(3), Florian,V., Dangorr,N. (1994). Personal and familial adaptation of women with servers physical disabilities : A further validation of the double ABCX model. Journal of Marriage and The Family,56, Frey, K. S., Greenbery, M. T., & Fewell, R. R.(1989). Stress and coping among parents of handicapped children : a multidimensional approach. American Journal of Mental Retardation, 94(3),

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南華大學數位論文

南華大學數位論文南華大學教育社會學研究所碩士論文高職智能障礙學生性教育課程之行動研究 Action research of sex education for students with intellectual disability in a vocational school 研究生 : 蘇淑惠指導教授 : 林昱瑄博士中